Esophagus Dilitation #24

Just a quick note to let you know that Lucy's dilatation on Thursday went well.

Her GI doctor said while the esophagus continues to grow together, he can tell it is at a much slower rate and was more open than last time (in December).  We are planning to go down to yearly "maintenance" so don't have to repeat until next August - woo hoo!

The coming out of anesthesia part was AWFUL!  She had a lot of trouble keeping her oxygen levels up, so ended up getting re-sedated, lots of oxygen and an EPI Nebulizer.  When we finally got to see her, she was still sleeping for another 2 hours and we were otld she may need to stay overnight...however, in true Lucy form, when she was fully awake, she pepped right up, asked for a Popsicle and was ready to head home.  What a champ!!  It was a long day away from baby Ruby, but she was well cared for by my parents while we were away - Thanks so much!!

No pics this week - I prefer photos of Lucy happy and playing, like her normal self, not sad and sleepy. :(

This week started all day preschool Monday, Wednesday and Friday for Miss Lucy...what a big girl!!!

Esophagus Dilatation #22

Melts my heart when she wants to hold my hand when she's "feeling kinda yucky"

Lucy's latest dilatation this week went pretty well.  The doc said that he could still get his scope through (a size "10"), but it was tight.  He dilated her back to a 15 and spent some extra time keeping the inflated balloon in her esophagus to get some extra tissue breakdown.  He's comfortable waiting 5 or 6 months until the next one (and so are we) in the hopes that eventually we can stretch it out enough not to require so much maintenance.

Her recovery was rough - it look her a few hours once we got home to stop throwing up but once she got the medicine out of her system, around dinnertime, she perked up.  She even felt good enough to see Great Grandma DeVries on Tuesday, who was visiting from Wisconsin this week!  She was very brave at the doctor and continued to show us what a strong, special girl she is!!

Four generations!

Meanwhile...we are preparing for Lucys' 3rd birthday next weekend...how did this sweet, sweet girl get to be so big????