Tuesday, December 29, 2015

Merry Christmas!



Merry Christmas to all our friends and family.  We had a wonderful December leading up to Christmas and Lucy really got into Christmas this year - playing with her Baby Jesus, reading the Christmas Story, figuring out what Santa was going to bring her!!  What a fun age to be at Christmas (and really always, ha!).

We FINALLY got a few inches of snow here in Minnesota, so we can go sledding down our very gently sloping yard, throw snowballs at the garage door, eat snow and then warm up with hot cocoa, which Lucy has discovered this winter and she LOVES it!

I got to go to preschool with Lucy and make this lovely gingerbread house!

Matching pajamas from Grandma for Lucy and "dolly"


Hot Cocoa to warm up after playing in our new snow!

Monday, December 14, 2015

Esophagus Dilation #23, Eye Doctor and Dentist, Oh My!

A visit with Santa.
We have had a busy few weeks with appointments for Miss Lucy!

Just after Thanksgiving, she went to the dentist - not her favorite place, but she was brave enough to let them check her teeth out and get fluoride painted on again - maybe next time we'll finally get some X-Rays?

Last week we went to the eye doctor for her annual check-up.  Another one of her not favorite places...she doesn't like the blurry vision when her pupils are dilated.  She did great, though, telling the techs what all the pictures were and letting the eye doc look at her with his silly hat on!  Still no concerns with her vision and the doc didn't see any indication of optic never swelling or damage (the main concern in kiddos with hydrocephalus).  Praise the Lord for another good report!

Then on Friday, we went to the U for Lucy's 23rd esophagus dilation.  I cannot believe she's had so many.  It was definitely her WORST time for accepting the anesthesia mask - she had to be held down by me and a few nurses because she did NOT want that mask on.  Thankfully they let me be right next to her while they are giving her anesthesia so I'm the last person she sees before falling asleep.

The results were good...if you remember, it's been 6 months since her last dilation, the longest by about 5 or 6 weeks.  The GI doc said it was much easier to get his scope down (a size 10), so he feels that the tissue is growing back together slightly slower than it used to be (very slightly, but we'll take it!).  He dilated her to around a 15 again and recommended we try to wait 9 months for the next one.  Worst case scenario, her eating regresses and we have to bring her in earlier, so pretty low risk compared to such frequent anesthesia!  His short-term goal for her is to have to do no more than annual dilations while she is so little.

Her recovery was pretty good - faster than last time for sure...she felt better once she threw up after waking up and we were out of recovery in around 2 hours  (a near record for us!).  By Saturday morning, she was back to herself for the most part...perhaps even more hyper than usual, but that could be attributed to the donut run her and Jason went on that morning? :)

We are so proud of our little girl and her strength, resilience and general good attitude (with a few 3 year old fits sprinkled in!).  What a special gift to be her mommy and daddy.

We have managed to have some fun in between all these appointments - visiting Santa, going Christmas shopping and visiting Lark Toys in Kellogg, MN.  If you are local and haven't been there - we would highly recommend it!

Thank You for your continued prayers and support.


Celebrating successful Christmas shopping for frozen yogurt and LOTS of sprinkles!

Hanging on tight to the fast carousel at Lark toys - the animals are wooden and all hand carved!