September is Hydrocephalus Awareness month, reminding us all the there is NO CURE for this condition and in most cases, brain surgery is the only treatment for affected patients. In the majority of cases, one surgery is not enough and shunts malfunction, requiring follow-up surgeries for the patients
We are SO thankful that Lucy has not had any issues with her shunt thus far, but every time she seems extra sleepy or throws up or tells me that her head hurts, I briefly worry that this might me the time. :( I try to remind myself to take a deep breath, trust God and know that His plan for her life is EXTRAORDINARY and He will take care of her always.
We were able to participate in the local Hydrocephalus Walk at the Mall of America again this year - it's still quite a feat for us to get 4 humans out of the house by 7 am, we were feeling pretty good about that! Lucy got to meet Miss Minnesota (a real princess!), which was her favorite part! All hydrocephalus patients got an orange bandanna to wear, which Lucy wore proudly!
We have an appointment with Lucy's neurologist next week - thankfully no MRI this time - and anticipate that it will be an uneventful appointment...will post after we meet with him. Jason and I are continually impressed by miss Lucy - she can read most words, is hilarious at times and is such a sweet, caring big sister!
Thank You for your continues thoughts, prayers and support for Lucy and all of us!
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| Relaxing in the crib together... |
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| Playing Salon with Daddy |
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| PJs on, ready for a story with cousin Dawson! |
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| And look which sweet, sweet baby is 3 months old already!!! |
