Wednesday, November 9, 2022

10 years!



 

It has been a WHILE since we posted a blog.  I thought that Lucy's 10th year was a great reason to dust off the blog and document some updates.

For one, how is she 10?  Some of the events of her traumatic diagnosis, NICU stay and early struggles are so fresh in my mind while others are a fuzzy memory.  Her first 10 years have been SO, SO hard as a parent but like most difficult things in life they have taught us so much about ourselves and those we surround ourselves with.

When Lucy was tiny, and really up until about 4 years ago our main focus areas for her were her health because she had so many repeat procedures, hospital stays and lingering sickness.  After her laryngeal cleft surgery, her recurrent pneumonia was a lot better but she continued to struggle with "CVS" episodes of throwing up, extreme restlessness, lethargy and severe anemia.  Up until the beginning of this year (2022), these episodes continued to plague her monthly.  However after several tests, medication attempts, a variety of doctors and the grace of God, those have stopped.  We are in a season of respite from major health concerns and it is so good for Lucy and for our family.  

When her health challenges were under control for the most part, we worried about her ability to keep up in school, to make friends with peers her age, to be independent.  We celebrated victories along the way but also wondered if she was behind in some way.  I continued to cling to the hope that Romans 12:12 offers, "Be joyful in hope, patient in affliction, faithful in prayer."

Now she is 10.  Her body is strong and capable.  She can play sports, she is keeping up in school,  has friends with common interests.  She is kind and empathetic.  She is creative and funny.  She is amazing.  She is a testament to God's providence in our lives, His healing power, His answers to prayers offered up by our family and friends.

Thanks for hanging with us and supporting us for 10 years!