Sunday, October 27, 2013

Esophagus Dilatation #10

Playing dress-up - such a girl!
 Lucy had another esophagus dilatation on Tuesday.  That was #10 for her - can you believe it?  She did great - charming all the nurses in pre-op and recovery and overall just having a great attitude about the whole situation.

The doctor (not her normal GI doctor, but one we have seen several times) said that we are at a bit of a plateau with dilatations.  Her esophagus is not growing together nearly as much as it was in the beginning, but they are unable to make much progress beyond the number 8 balloon that they have been using that last few times.  She essentially has a ridge of scar tissue that is very stubborn and difficult to break through.

The doctor was not willing to commit to when a different tactic might be taken, but we may need to consider something else (like clipping or lasering the ridge of scar tissue).  Right now, they are focused on getting her esophagus to stay open through these ongoing dilatations and determining if we will eventually make the progress we need to or not.  So, while we do not think that it will happen any time soon, we need to start preparing for a more invasive procedure to make more progress. :(

Please, please pray for God's healing for little miss Lucy!

Meanwhile, she continues to thrive as a toddler - running up and down the hallway at home, giggling instead of going to bed at night, watching herself in the mirror and visiting the neighbor boys when the weather permits!

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