Esophagus Dilatation #14

Winter boots but no pants?!?!?

Well, we are STILL at a 10 on the esophagus dilatation size, but we are going to extend the time between dilatations from 4 weeks to 5 or 6 weeks.  Baby steps to the end goal, right?  As you can imagine, we are trying to be patient in the midst of this very long journey to Lucy's ability to eat "normally," but it is difficult!  Now that we have figured out what works for her from a food perspective and we rarely have issues with food getting caught, I need to remind myself to help her continue to expand her palate and try new things that we think she will be able to successfully eat.

Lucy LOVES getting to take trips in the car ("Go, go go" as she says!), so we feel a little bad when we take her to the hospital and she is so excited...but she does get to play with toys, meet other little patients and get loved up by all the nurses, so it's not ALL bad for her, I guess!

Helping me sort laundry?

Otherwise, she is doing great and we are holding on to the hope of warmer weather coming by playing on the slide in the basement, giving her monkey rides in the swing and relaxing in a nice warm bath at the end of the day!

Every once in awhile, Lucy will be VERY quiet in her room by herself - we usually find her reading books or admiring herself in the mirror!