Wednesday, March 5, 2014

Two Years Post-Diagnosis: A letter to our daughter

Lucy:

Today marks the 2-year anniversary of when we found out about your hydrocephalus diagnosis - 4 months before you were even due to come into this world!!


We know that life will not always be easy for you and that we may have to tell you that you can't do some things because you have a shunt.

But we also know that we love you SO MUCH!  As I reflect back to the days and weeks following your diagnosis, we didn't know what to expect and were so scared that you wouldn't be able to lead a full life and so sad that you had one giant strike against you before you were even born. I could have held you all night as you laid peacefully sleeping in my arms tonight, wishing that we could freeze that moment in time - my perfect, sweet little girl.



We are so happy that God chose us to be your mommy and daddy and can't imagine our lives without you.  We know that you are perfect for us and that "...every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows." (James 1:17)

You are such a strong little girl and will do great things.  Our prayer for you is the same as our prayer for ourselves - may you always remember to "Be joyful in hope, patient in affliction, faithful in prayer." (Romans 12:12)
 
All of our love,
 Mommy and Daddy

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