Sunday, June 8, 2014

Esophagus Dilatation #17

Enjoying a cracker - it is amazing to me sometimes that she doesn't have major food issues...if it tastes good to her, she will eat it, whether or not her esophagus can stretch enough to get it down or not!
Lucy's dilatation last week went good.  Going to Minneapolis was no problem at all.  In fact, we confused the surgeon - he said he looked at his schedule and saw Lucy Bryant and thought he was supposed to be in St. Paul!!  He was able to get through the 12's again and her eating tolerance continues to be good.  We very gradually experiment with new foods / bite sizes = some with better results than others (for example, tortilla chips = bad but potato chips = OK, assuming she eats them slowly, chews them well and only has like 2 or 3 in a sitting).

We are going to stretch her next dilatation out 7 weeks (no pun intended!), so that is exciting!!  Other than that, we are due for a Neurology appointment soon but that is it as far as "extra" appointments.

Lucy has been keeping us busy (as always), helping me paint a retaining wall in our backyard (and not happy to have to wash said paint off her face):


...and setting up tea parties for daddy to join her at:

...and focusing on some serious Play-Doh art:





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