Monday, October 5, 2015

Hydrocephalus Walk

Ready to Walk!!
We had the wonderful opportunity to participate in Minnesota Chapter of the Hydrocephalus Association walk at the Mall of America a few weeks ago.  Some of my family joined us there and we got matching shirts for the occasion!  Actually, we had this whole thing planned for LAST year but it happened over the weekend that Lucy was so sick, right after she got her feeding tube out and right before she was in the hospital getting it put back in.  So, we boxed up the shirts and packed them away until this year!

What a great event!  We had a houseful of people the night before the event (and 2 dogs!), but managed to get all 9 of us up and out of the house before 7 am!  We got to meet some fun characters, had brunch all together and then Jason and I took Lucy to Nickelodeon Universe for some rides.
Carousel Ride with Daddy!

Meeting Dora the Explorer!
We are so grateful for these types of organizations that help raise money and awareness for hydrocephalus, arguably an underfunded condition that affects millions!  If you would like donate in support of this, please visit our fundraising page at http://hawalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129998&supid=386062722 to donate online.

It has been 3 years since Lucy had her shunt implanted and I really feel like that surgery of all of hers, is the one that changed her life...she got healthier, more alert and all around BETTER after that surgery.

Surgery Day - 3 years ago!


This week, we go to her neurosurgeon for a brain MRI and followup to make sure her shunt is still doing its job.  Prayers for wisdom for the doctors, comfort for Lucy (she'll be awake for the MRI :() and overall continued health for Lucy is always appreciated!

We'll keep you updated on the results.




Highlight of Lucy's Day? Meeting Elsa and Anna from Frozen (perhaps the highlight of her first three years of life, actually)


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