Thursday, December 6, 2012

Lucy's new "team"


We had our first meeting with Lucy's new pediatrician this week - she was great!  Very clearly, she had studied Lucy's file and knew all about her background.  She asked questions that were intelligent and well researched and we left with a boatload of referral forms for us to follow-up on.

Lucy's Stats:


Height - 1 ft, 11 inches (3rd percentile)
Weight - 14 lbs (25th percentile)

She's growing, but still on the small side of the growth chart; however, these percentiles are based on full-term births so don't take into account that she was born 4 weeks early.  Also, if you've ever met her grandma Jeanette or aunt Kitty, you know that there are some short genes on the Jason's side!

Lucy's new Minneapolis-based "team" includes:

 - Pediatrician
 - ENT
 - Gastroenterology
 - Cardiology
 - Urology
 - Spinal
 - Neurology
 - Early Intervention (through the school district)

Hopefully, some of these visits will be one time or annual visits only and some of them will no longer be needed as she continues to grow and heal from her surgeries.  However, it is a bit daunting for Jason and I to schedule time with and meet all these new doctors!

Meanwhile, today we tried cereal for the first time - I'll let you decide if she liked it or not!


Her bottle feeding continues to go slowly; she can definitely do it, but she just doesn't like to.  We successfully feed her about 1/2 oz per feeding by bottle and the rest through her feeding tube.  We're hopeful that she'll like cereal and baby food better and we'll be able to get more of her food in through her mouth if she doesn't have to suck it through a bottle.

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