Esophagus Dilatation #3

Lucy had her 3rd esophagus dilatation last Wednesday.  Overall, it went well and we continue to make extremely slow progress, which is expected with this type of issue.  At her last procedure, the docs were able to get a balloon inflated to Level One and this latest time, they were able to get to a Level Two with that balloon before there was tissue breakdown and they had to stop.  In between procedures, the opening begins to close up again, but the tissue is much more flexible so up until now they have always been able to make some forward progress, which is great.

She had some trouble with the anesthesia again - it took her awhile to fully wake up and to consistently keep her oxygen levels up to the point that we could take her home.  It is highly frustrating to Jason and I, because we have a different anesthesiologist every time so we tell them about her past issues and remind them that she has to be pretty awake before they remove the breathing tube and that she does better with less narcotics, etc. etc.  However, it seems like they either don't listen or think they know better and then we get the results that we did this time.  SO FRUSTRATING!

But, par for the course, Miss Lucy handles it like a champ and is back to her typical fun-loving self within 24 hours, after a good night of hard sleep.

We've scheduled her next dilatation for three weeks out and also have a neurology visit and her 12-month pediatrician visit on the books for June already!

She's busy crawling all over now that she's gotten the hang of it, and she's eating Cheerios!  I'm so proud of her!!!  We consistently try to experiment with new textures by thickening her food and making our own pureed foods for her to try or giving her mushy things like noodles or carrots to gum on.  Some thing she does better with than others, but she is doing a good job of learning to feed herself Cheerios and so far has been able to swallow them without gagging - what a big girl!

Other than that, we cannot believe that she will be 11 months old tomorrow and are very excited to close on our new house tomorrow as well!

Lucy exploring the new house