Monday, July 1, 2013

Esophagus Dilatation #5

Lucy Hamming it up
Wow...I can't believe that Lucy has had 5 of these dilatations already!  Last week's procedure went very well though, so we are feeling grateful for that.  The doctor said her esophagus seemed the same size as last time to him, which is wonderful news!  That means it is hopefully wide enough open that it will stop growing together in between procedures all of the time and that the forward progress will be faster.

Instead of going back in 3 weeks, we will wait 4 weeks this time - woo hoo!  We have also scheduled a follow-up feeding clinic appointment for Lucy in a few weeks.  If you recall, we visited the feeding clinic a few months ago and didn't get much for results - they were very hesitant to work with her on feeding because of her narrow esophagus and history of aspiration.  So, hopefully this time will be better and we'll get more results.

Guilty - caught rifling through the fridge!!
As a side note, we received the most lovely gift in the mail the night before her procedure - it was a Prayer Book from the 3rd and 4th grade class at Community Christian School (where I went to grade school).  It is filled with pictures and Bible verses from the class that they made during the school year - such an encouragement to us - Lucy will treasure it always!

So thank you to Gracie, Mae, Lydia, Carter, Joseph, Brad, Tracelyn, Daniel, Bryce, Jackson, Lilly, Max, Lydia, Jenna, Olivia, Amy and all of the other contributors to Lucy's Prayer Book!  Your prayers have lifted us up and provided hope and encouragement to our whole family.

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