Esophagus Dilatation #6

Lucy's sixth esophagus dilatation was completed yesterday (Monday).  She did great - one of the best recoveries for her in terms of not needing oxygen for too long in recovery and general temperament afterwards.  She is such a trooper!  Unfortunately, the nurses and staff pretty much all know us (or know of us), so we are starting to have nurses we've had before.  This is actually a good thing, because they know how she acts during recovery and are patient and understanding with us and let us sort of do our thing and be in the immediate recovery room with her to comfort her.

However, even though her recovery was great, her actual dilatation results were disappointing.  Her esophagus had grown together more than last time - to the point that the doctor was only able to re-dilate it to it's previous number (8 mm) and did not make any additional forward progress, as we have with each previous dilatation.  We were definitely bummed about this outcome, as we were hoping that we could begin to stretch out these dilatations more than the 3 - 4 weeks apart.

We knew early on, when Lucy was still in the NICU, that this would be a journey of ups and downs.  We've had so many "up" moments lately, that I think we got comfortable in her forward progress to the point that this setback was a surprise for us.  I renew my claim on Romans 12:12, to be "...joyful in hope, patient in affliction, faithful in prayer," as we continue on this journey with our little girl.

Thank you for your well wishes, prayers, emails, phone calls, texts and overall support over the past few days!  We appreciate you all!