Esophagus Dilatation #18 and MRI

Lucy had her 18th esophagus dilatation today. Since she was sedated, doctors took the opportunity to have a full brain and spinal MRI done (without sedation it would have been a "quick" brain and partial spinal MRI). 

As always, she did great, even though the OR was running 2 HOURS BEHIND!  Thankfully, there are many nurses who love to love on Lucy and a very helpful social worker who bring cars for her to ride around in and bubbles for her to play with.  It was a long day, with the delay, the extra procedure and then after an MRI, Lucy's shunt needs to be re-programmed back to her typical setting, since the magnets in the MRI machine reset it.  Plus, like 10 minutes after we got home, Jason headed out the door for a week-long trip to Fargo.  Lucy felt good enough tonight to check out a new park by our house but was ready for a early night!  She has had a busy week playing with Grandma all week (Jason's mom), who was visiting from Virgina (the state, not the city!!)

Her dilatation got her to the 2nd level of the 12 (last time we got to the third).  It's not entirely surprising that we stopped at a slightly smaller setting because we are spacing these out more.  There is still no end to these procedures in sight, but all of her doctors agree that she is making tremendous progress and for that, we are eternally grateful! :)  The doctor we had today has been on maternity leave for awhile and she couldn't believe how much progress Lucy has been been in the past few months.

Lucy also had her Well-Child 2-year appoint this week.  Here are her stats:

Weight:  24 lbs, 11 oz (22nd percentile)
Height:  33. inches (49th percentile)

What a big girl!  We can definitely tell that she is getting taller and looks so much more like a toddler and not my little baby anymore!  At her 1 year appointment, she was:

Weight: 18 lbs, 5 oz (between 10th and 25th percentile)
Height:  27.6 inches (10th percentile)

Two Years Old!

One Year Old!

Our prayer, as always, continues to be that we... "Be joyful in hope, patient in affliction, faithful in prayer." (Romans 12:12)