Thursday, July 10, 2014

Happy 4th of July...

Modeling a new accessory
 ...we are a bit late wishing everyone a happy 4th of July but we definitely did enjoy the long summer weekend!

We went to my parents' lake house in northern Minnesota along with my parents and my oldest sister and her three youngest kids (5,7 and 10).  Lucy LOVES, LOVES, LOVES playing with her cousins and riding on grandpa's boat and touching the fish that we catch.

Cousin iPad time!
Checking out Rosie the dog's house
Picking out her spot for the campfire.
Lucy is keeping us busy repeating everything we say, sneaking snacks from the cupboard and running through the house...literally...running is one of her favorite "games" and it's even more fun if mommy or daddy run with her. :)

Sidewalk chalk!!

Other than that, we are continuing our streak of no doctor appointments and her feeding tube site is much, much better.  It is still a little red around the actual site, but the leaking has lessened a ton so we are back to changing her dressing 2 or 3 times a day again. Yay!

Next week, we have a weight check with her pediatrician and another dilatation as well as an full spine and brain MRI with her neurosurgery team, so it will be a few long days again for our sweet, sweet girl.

Throwback pic from last fourth of July!!

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