October will be a better month...

Love her curls!

It has been over a month since Lucy got her feeding tube out (and subsequently put BACK in...UGH!).  I would say she is fully recovered - it took several weeks for her skin to get back to pre-leaking condition and for her to allow us to change her dressing without saying, "No, No, No!"  Her digestive system was completely screwed up for a few weeks as well, but she is finally back to normal eating...and all that goes along with that.  Her mood is also back to her standard, sunny self.  For several weeks, she was not very agreeable with ANYTHING we suggested - partly from being given everything she wanted for a few weeks, just to keep her mind off of her pain and partly from still being in pain for awhile, I think.

We have an appointment with the pediatric gastroenterology department at the University of Minnesota in 2 weeks and an appointment for her regular dilatation at the end of the month (but NOT with her previous GI doctor - one of his colleagues).  So, we are really back to the waiting game, focusing on healing, getting over bitterness (me, not Lucy:)) and making a go-forward plan for getting Lucy's tube out once and for all!.

Lucy has been talking up a storm, practicing her counting, meeting new friends at her ECFE music class, building forts, collecting leaves, learning to do "chores" (she is a big fan of setting the table - most thing end up spilled somewhere between the counter and the table, but it's a start!) and getting outside when it's not rainy or too cold.  She even spent 2 nights with just daddy while I went out-of-town on a work trip.  What a big girl!!

iPad time in her fort

Layers of pink and purple to fend off the fall chill at the playground

Peek-a-Boo!  Can you see Lucy?

Thank you for your continued prayers and interest in Lucy's journey.  She's a very special little girl! :)