Monday, January 19, 2015

"We don't need to see Lucy until she is...4"!?!?!?

Having breakfast with Lucy and her new doll...named "Dolly"
Just before Christmas, Lucy had a cardiologist visit at Children's where she had several tests and ultrasounds of her heart.  She did not like it - I can't blame her!  An unfortunate side effect from all of her hospital stays last fall was some serious doctor/clinic/hospital fear, so we are working through that with her.  Again - it's totally understandable how she could feel that way!

In any case, the cardiologist said that although she has a small VSD (hole in her heart), there is a very small chance (like less than 1%) that it would ever cause any issues for her.  Her veins and arteries appear to be working correctly and we don't have to go back until she is 4...wait, what?  I cannot imagine a day when Lucy is 4 years old!

I think I mentioned on here that her pediatrician was leaving Children's Hospitals and Clinics at the end of 2014?  Last week was our first visit to a new doctor for Lucy and we chose one close to home that is in the same system as the University Hospital where her GI and surgeon practice.  It was wonderful to have a 5 minute drive vs. 25 minute drive and to have free parking for the quick 20 minute visit!  So, we are hopeful that this will work out for us all.

This coming Thursday is her next dilatation.  If you feel like it's been awhile - it has!  Almost 3 months since her last one and she is still eating with very few issues!  I am VERY anxious about this because of the terrible outcomes from her last 2 procedures.  I know that the feeding tube was a huge factor in those situations, but nonetheless, it will be her first time having a "normal" dilatation with our new docs and I am already ready for it to be over!  As always, your thoughts and prayers are greatly appreciated in the days leading up to the procedure.

I'll leave you with some fun winter pictures of Lucy - so nice to have milder temperatures in MN!


Helping mom finish our snowman

Discovering how GOOD snow is to eat! :)

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