Home!

So happy to be able to giggle together again!

We are so happy to report that Lucy was released on Friday evening...it was a bit touch and go before they let us head home as her blood pressure was still quite high and she was throwing up every few hours.  However, we were given the green light and after a 2 1/2 days at home, Lucy is very close to her previous self.  At first, she was complaining about her stomach hurting quite a bit, but as we got her system used to food again, that seems to have stopped for the most part.  She is on laxatives for a while, so we have some work to do to get all of her system working at the correct pace again.

Nearly every single medical professional that met Lucy told her how brave she was and what a great patient she is...now I'm sure they tell most kids her age that, but she seriously is the best!  She's definitely a mind over matter kind of kiddo, so once she knows she has to do something like take a med or get a nebulizer she sets her mind to it and just gets it done.  What a rock star!

She spent a good part of yesterday and today begging for food that I wouldn't let her eat, like BBQ potato chips, ice cream, milk on her cereal and Chick-Fil-A. Basically, I made her eat dry cereal, crackers, applesauce and water.  :)

I feel like we lost the first week of the year!  Again, all things go on hold when a kiddo is in the hospital...so we spent the weekend enjoying extra cuddles while trying to cook some normal meals, do laundry and organize the house a little bit.  As you know, it was especially difficult to leave Ruby at home, since she is still so little and really expects mommy to be around.  In the past, I've been able to spend 100% of the time with Lucy in the hospital, but this time I had to split my time between home and the hospital, so that was tough on both of us.

Thanks again for your support!  We appreciate it so much.  This episode has reinforced for us that Lucy's body cannot handle illnesses like others can, so we definitely anticipate this will not be the last time we'll be in this situation and I'm doing lots of research on how we can change our lifestyle, diet and other habits to help prevent this as much as possible.