Growing Up

Doesn't she look so big?  Notice the double pacifiers...HA!

We have had a very uneventful week, which for us is great!  No doctors appointments, only a few calls to insurance and lots of fun family time.  She is definitely eating better than before her esophagus dilatation and if we could just teach her to drink out of a sippy cup, we would be able to start cutting down her G-tube feedings.  Currently, however, she still does not like to drink anything orally, but she would eat anything put in front of her (even though she's still only getting purees - not counting the newspaper she ate on Wednesday!).  We do give her "real food" in those little baby net things, which she can chew/suck on and get out a puree of sorts.  She'll eat carrots, potatoes, peaches, pineapple and even beans and rice in that thing and LOVES the taste of food that isn't baby food!

Lucy is geting to be more and more vocal and squirmy!  She is rarely quiet and almost never sits still.  Which, as you can imagine, leads to even more G-tube leaking, but I am hoping that she'll be up off her stomach and crawling soon and that the homemade G-tube dressing that we found will continue to keep her leaking somewhat at bay.  It's a huge pain and both Jason and I are so sick of changing her clothes and dressing 3, 4 or even sometimes 5 or 6 times a day!  I've been busy scouring message boards and talking to other parents who have had babies with G-tubes to get some ideas.  It seems like the medical community are very passive about the problem - they sort of leave it in the hands of the parents to figure out the G-tube dressing, leaking and corresponding skin care.  A HUGE Thank You to my aunt, Marilyn who got us some free samples of all different dressing and tape types to try out.

All in all, it's been nice to have a quiet week and next week will likely be same.  She is scheduled for her last dose of Synagis, but no other appointments.

So, we will continue to hope for warmer weather (am a broken record on that statement?  Seems like spring is taking its sweet time coming to Minnesota to stay!) and enjoying Lucy's sweet personality!  Every day she seems less and less like a baby and more and more like a little girl!

Meeting sweet little cousin Hannah a few weeks ago

Hanging out with great-Grandpa Los and sitting still like such a big girl!